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ABSTRACT: Background
End-of-life (EOL) discussions for organ-failure patients with family caregivers are important factors for successful EOL care. However, identifying the appropriate time to initiate these discussions is difficult owing to the unpredictability of the disease trajectory. No practical tools or clinical indicators currently exist that can help identify non-cancer patients receiving home care who need EOL discussions.Methods
The survey was conducted from February 2020 to June 2021. To identify the appropriate time at which to initiate EOL discussions for patients with organ failure and their caregivers, we determined the time when home-visit nurses initiated EOL discussions. We interviewed 19 home-visit nurses (mean total home-visit nursing experience: 6.7 ± 5.9 years) and analyzed the data using Hsieh and Shannon's qualitative content approach.Results
Three themes related to home-visit nurses' experiences of identifying the appropriate time to start EOL discussions were identified: symptomatic worsening, lack of patients' and family caregivers' EOL awareness, and decline in activities of daily living.Conclusions
It is necessary to develop a tool that will enable home-visit nurses to implement EOL discussions at the appropriate time.
SUBMITTER: Asaumi K
PROVIDER: S-EPMC10405459 | biostudies-literature | 2023 Aug
REPOSITORIES: biostudies-literature
Asaumi Kurumi K Oki Masataka M Murakami Yoshie Y
BMC nursing 20230807 1
<h4>Background</h4>End-of-life (EOL) discussions for organ-failure patients with family caregivers are important factors for successful EOL care. However, identifying the appropriate time to initiate these discussions is difficult owing to the unpredictability of the disease trajectory. No practical tools or clinical indicators currently exist that can help identify non-cancer patients receiving home care who need EOL discussions.<h4>Methods</h4>The survey was conducted from February 2020 to Jun ...[more]