Understanding parents' experiences of care for children with medical complexity in England: a qualitative study.

ABSTRACT:

Objectives

To understand parents' experiences of receiving care for their child with medical complexity.

Design

Qualitative semi-structured interviews with parents of children with medical complexities across England analysed using reflexive thematic analysis.

Results

Twenty parents from four hospital sites in England took part in the study, a total of 17 interviews were completed, 3 joint and 14 single parent interviews. Four themes were developed: parents feel abandoned; continuity of care (made up of three subthemes); equipment barriers; and charities fill the gaps.

Conclusions

The perceived quality of healthcare provided to this population was found to be inconsistent, positive examples referred to continuity of care; communication, clinical management and

SUBMITTER: McLorie EV 

PROVIDER: S-EPMC10407344 | biostudies-literature | 2023 Aug

REPOSITORIES: biostudies-literature