Swiss Survey on current practices and opinions on clinical constellations triggering the search for PNH clones.

ABSTRACT: This national survey investigated the current practice in Switzerland by collecting participants' opinions on paroxysmal nocturnal hemoglobinuria (PNH) clone assessment and clinical practice.

Aim

This study aimed to investigate clinical indications prompting PNH clones' assessment and physician's accessibility of a flow cytometry facility, and also to understand clinical attitudes on the follow-up (FU) of patients with PNH clones.

Methods

The survey includes 16 multiple-choice questions related to PNH and targets physicians with a definite level of experience in the topic using two screener questions. Opinion on clinical management was collected using hypothetical clinical situations. Each participant had the option of being contacted to further discuss the survey results. Th

SUBMITTER: Rovo A 

PROVIDER: S-EPMC10410560 | biostudies-literature | 2023

REPOSITORIES: biostudies-literature