Refractory inflammatory arthritis definition and model generated through patient and multi-disciplinary professional modified Delphi process.

ABSTRACT:

Objective

Various definitions have been proposed for Refractory Disease in people with Rheumatoid Arthritis; however, none were generated for Polyarticular Juvenile Idiopathic Arthritis or involving adult and paediatric multidisciplinary healthcare professionals and patients. The study aim is to redefine Refractory Disease, using Delphi methodology.

Methods

Three rounds of surveys (one nominal group and two online (2019-2020)) to achieve consensus using a predetermined cut-off were conducted voting on: a) name, b) treatment and inflammation, c) symptoms and impact domains, and d) rating of individual components within domains. Theoretical application of the definition was conducted through a scoping exercise.

Results

Votes were collected across three rounds from Patie

SUBMITTER: Chaplin H 

PROVIDER: S-EPMC10411820 | biostudies-literature | 2023

REPOSITORIES: biostudies-literature