Patient-Reported Experiences With Median Arcuate Ligament Syndrome: Resilience and Resources Required.

ABSTRACT:

Objective

Median arcuate ligament syndrome (MALS) is a vascular condition that is treated surgically. MALS is a diagnosis of exclusion and therefore often requires that pediatric patients undergo an exhaustive number of tests and potential experiences with misdiagnosis before receiving an accurate diagnosis and treatment. The purpose of the current mixed-methods study was to assess the pediatric patient- and parent-reported experience of (a) coping with and managing symptoms associated with MALS and (b) the diagnostic, treatment, and recovery process for pediatric MALS.

Methods

Nine postsurgical pediatric patients (M age = 20.11 ± 3.59; all <18 at time of surgery) and 6 parents participated in semistructured focus groups and completed self-report questionnaires about

SUBMITTER: Stiles-Shields C 

PROVIDER: S-EPMC10419102 | biostudies-literature | 2022 Mar

REPOSITORIES: biostudies-literature