Dynamic consent, communication and return of results in large-scale health data reuse: Survey of public preferences

ABSTRACT: Dynamic consent forms a comprehensive, tailored approach for interacting with research participants. We conducted a survey study to inquire how research participants evaluate the elements of consent, information provision, communication and return of results within dynamic consent in a hypothetical health data reuse scenario. We distributed a digital questionnaire among a purposive sample of patient panel members. Data were analysed using descriptive and nonparametric inferential statistics. Respondents favoured the potential to manage changing consent preferences over time. There was much agreement between people favouring closer and more specific control over data reuse approval and those in favour of broader approval, facilitated by an opt-out system or an independent data reuse committ

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PROVIDER: S-EPMC10434987 | biostudies-literature | 2023 Jan

REPOSITORIES: biostudies-literature