Patient-Reported Outcomes Over 24 Months in Pediatric CKD: Findings From the MyKidneyHealth Cohort Study.

ABSTRACT:

Rationale & objective

The lived experience of children with chronic kidney disease (CKD) is poorly characterized. We examined the associations between patient-reported outcome (PRO) scores measuring their fatigue, sleep health, psychological distress, family relationships, and global health with clinical outcomes over time in children, adolescents, and younger adults with CKD and investigated how the PRO scores of this group compare with those of other children, adolescents, and younger adults.

Study design

Prospective cohort study.

Setting & participants

212 children, adolescentss, and adults aged 8 to 21 years with CKD and their parents recruited from 16 nephrology programs across North America.

Predictors

CKD stage, disease etiology, and sociodemographic and

SUBMITTER: Amaral S 

PROVIDER: S-EPMC10440290 | biostudies-literature | 2023 Aug

REPOSITORIES: biostudies-literature