Patients' and carers' priorities for cancer research in Aotearoa/New Zealand.

ABSTRACT:

Background

Discrepancies have been reported between what is being researched, and what patients/families deem important to be investigated. Our aim was to understand research priorities for those who live with cancer in Aotearoa/New Zealand, with emphasis on Māori.

Methods

Adult outpatients with cancer and their whānau/family completed a survey (demographics, selecting keywords, free-text comments) at Christchurch hospital. Quantitative and qualitative data were evaluated using standard statistical and thematic analyses, respectively.

Results

We recruited 205 participants, including both tūroro/patients (n = 129) and their whānau/family/carer (n = 76). Partnership with Māori health workers enabled greater recruitment of Māori participants (19%), compared to the propor

SUBMITTER: de Vries M 

PROVIDER: S-EPMC10443847 | biostudies-literature | 2023

REPOSITORIES: biostudies-literature