Financial and relational impact of having a boy with posterior urethral valves.

ABSTRACT:

Introduction

Childhood chronic diseases affect family functioning and well-being. The aim of this study was to measure the impact of caring for a child with PUV, and the factors that most impact the burden of care.

Patients and method

We gave a questionnaire on the familial impact of having a child with posterior urethral valves to all parents of a child included in the CIRCUP trial from 2015 onwards. The questionnaire included questions about the parents' demographics, health, professional, financial and marital status and how these evolved since the child's birth as well as the "impact on family scale" (IOFS), which gives a total score ranging from 15 (no impact) to 60 (maximum impact). We then analyzed both the results of the specific demographic questions as well as the

SUBMITTER: Harper L 

PROVIDER: S-EPMC10446897 | biostudies-literature | 2023

REPOSITORIES: biostudies-literature