Patients' Needs Concerning Patient Education in Axial Spondyloarthritis: A Qualitative Study.

ABSTRACT:

Introduction

Within the EULAR recommendations, patient education (PE) is stated as the basis of the management of axial spondyloarthritis (axSpA). However, educational needs are scarcely qualitatively studied in axSpA. Therefore, we aimed to explore experiences and needs of PE in patients with axSpA.

Methods

A phenomenological approach was used, with semi-structured in-depth interviews with patients with axSpA including broad variation in characteristics. Thematic analysis was applied. To enhance credibility, data saturation, research triangulation, peer debriefing, member checking, theoretical notes, and bracketing were performed.

Results

Three interrelated themes regarding PE were identified from 20 interviews: illness perception, content, and 'availability'. Illnes

SUBMITTER: van der Kraan YM 

PROVIDER: S-EPMC10469151 | biostudies-literature | 2023 Oct

REPOSITORIES: biostudies-literature