Public and patient involvement: a survey on knowledge, experience and opinions among researchers within a precision oncology European project.

ABSTRACT:

Background

Patient and Public Involvement (PPI) is slowly but steadily being implemented in all phases of clinical research. As part of the European project "Building Data Rich Clinical Trials" a survey was launched to investigate the knowledge, experiences and opinions on this topic of clinicians and researchers from seven European clinical and non-clinical centers (Cancer Core Europe).

Methods

An invitation to take part in a cross-sectional web survey was sent to 199 clinicians and researchers working in the field of precision oncology. The questionnaire was developed ad hoc because no existing questionnaires met the purpose of this study. The analysis takes account of whether respondents had experience on PPI or not.

Results

On a total of 101 respondents, this surv

SUBMITTER: Mosconi P 

PROVIDER: S-EPMC10470190 | biostudies-literature | 2023 Aug

REPOSITORIES: biostudies-literature