Home-based care for people living with dementia at the end of life: the perspective of experts.

ABSTRACT:

Background

In the last phase of their lives, people living with dementia often indicate restlessness, anxiety or pain. Further, their care is considered inadequate, as they are, for example, sometimes overtreated for curative care or undertreated for pain management. These patients also face multiple barriers in accessing palliative care. This qualitative study explores the perception of experts about how people living with dementia in Germany are cared for at home toward the end of their lives.

Methods

A total of 12 experts involved in outpatient/palliative care were recruited to constitute a purposive, heterogeneous sample. Interviews, which were structured using an interview guide, were conducted with physicians, nurses, representatives of health insurance funds, welfare

SUBMITTER: Pinkert C 

PROVIDER: S-EPMC10472677 | biostudies-literature | 2023 Sep

REPOSITORIES: biostudies-literature