Sharing results with participants (and community) in malaria related research: Perspectives and experience from researchers.

ABSTRACT: Results-sharing with participants or their communities after the completion of research is an essential element of ethical research. The main objective of this study was to identify and document current practice of trial result dissemination, to explore attitudes among trialists towards result dissemination and to better understand previous experiences and barriers to returning results to participants. This mixed-methods study used a sequential exploratory design with two phases: i) an initial qualitative phase to explore the topic and to inform the quantitative data collection, ii) a quantitative survey. Findings from the survey and interviews were triangulated and presented to a network of clinical malaria researchers for validation. A total of 11 semi-structured interviews (SSIs) were c

SUBMITTER: Weston S 

PROVIDER: S-EPMC10479888 | biostudies-literature | 2023

REPOSITORIES: biostudies-literature