The psychosocial impact of childhood dementia on children and their parents: a systematic review.

ABSTRACT:

Background

Childhood dementias are a group of rare and ultra-rare paediatric conditions clinically characterised by enduring global decline in central nervous system function, associated with a progressive loss of developmentally acquired skills, quality of life and shortened life expectancy. Traditional research, service development and advocacy efforts have been fragmented due to a focus on individual disorders, or groups classified by specific mechanisms or molecular pathogenesis. There are significant knowledge and clinician skill gaps regarding the shared psychosocial impacts of childhood dementia conditions. This systematic review integrates the existing international evidence of the collective psychosocial experiences of parents of children living with dementia.

Methods</

SUBMITTER: Nevin SM 

PROVIDER: S-EPMC10486052 | biostudies-literature | 2023 Sep

REPOSITORIES: biostudies-literature