Autism with co-occurring epilepsy care pathway in Europe.

ABSTRACT:

Background

Autism and epilepsy often occur together. Epilepsy and other associated conditions have a substantial impact on the well-being of autistic people and their families, reduce quality of life, and increase premature mortality. Despite this, there is a lack of studies investigating the care pathway of autistic children with co-occurring epilepsy in Europe.

Methods

We analyzed the care pathway for autistic children with associated epilepsy in Italy, Spain, and the United Kingdom from the perspective of caregivers (using a survey aimed at caregivers of autistic children 0-18 years old), the autistic community, and professionals, in order to identify major barriers preventing caregivers and autistic children from receiving timely screening and treatment of possible co-oc

SUBMITTER: Mendez MA 

PROVIDER: S-EPMC10486251 | biostudies-literature | 2023 Jul

REPOSITORIES: biostudies-literature