Definitions of resilience and resilience resource use as described by adults with congenital heart disease.

ABSTRACT:

Background

Adult congenital heart disease (ACHD) is a lifelong illness that presents ongoing challenges to quality of life. Fostering personal resilience resources to sustain well-being can enhance patients' psychosocial health.

Objective

We aimed to describe patients' resilience experiences: how they understand, develop, and utilize resilience resources in managing ACHD.

Methods

We conducted a qualitative study of patients with ACHD. Participants were recruited using maximum variation sampling. Individual, semi-structured interviews were conducted June 2020 to August 2021. We queried approaches to managing ACHD-related stress and experiences with resilience and analyzed responses with thematic analysis.

Results

Participant (N = 25) median age was 32 years (ran

SUBMITTER: Steiner JM 

PROVIDER: S-EPMC10486316 | biostudies-literature | 2023 Jun

REPOSITORIES: biostudies-literature