Planning ahead for research participation: survey of public and professional stakeholders' views about the acceptability and feasibility of advance research planning.

ABSTRACT:

Background

Anticipatory planning in the UK focuses on supporting people who anticipate periods of impaired capacity to express their wishes about future care through processes such as advance care planning. Other countries have extended anticipatory planning to include processes for people to prospectively express their preferences about research participation. Advance research planning (ARP) is thought to extend autonomy and ensure that 'proxy' decisions about research are based on their wishes and preferences.

Methods

A cross-sectional survey was conducted with two stakeholder groups (members of the public including people living with capacity-affecting conditions and family members; researchers and other professionals) who were recruited via research registries and other

SUBMITTER: Shepherd V 

PROVIDER: S-EPMC10492324 | biostudies-literature | 2023 Sep

REPOSITORIES: biostudies-literature