Unknown

Dataset Information

The impact of the COVID-19 pandemic on patients with juvenile idiopathic inflammatory myopathies.


ABSTRACT:

Background

Throughout the COVID-19 pandemic, there have been concerns regarding the risks of infection in patients with autoimmune disease. In this study, we investigated the impact of the pandemic on patients with juvenile idiopathic inflammatory myopathies (JIIM).

Methods

Data were collected using a patient/caregiver survey via Research Electronic Data Capture (REDCap) database. Eligibility included JIIM diagnosis and current age less than 21 years old. Surveys were distributed via the CureJM organization, social media, Childhood Arthritis and Rheumatology Research Alliance (CARRA) network and Dr. Peter Dent Pediatric Rheumatology Bulletin Board.

Results

Eighty-four respondents accessed the survey, 70 (83%) consented to participate, and 54 out of 70 completed the fu

SUBMITTER: Wahezi DM 

PROVIDER: S-EPMC10496159 | biostudies-literature | 2023 Sep

REPOSITORIES: biostudies-literature