The Cystic Fibrosis Learning Network: A mixed methods evaluation of program goals, attributes, and impact.

ABSTRACT:

Introduction

The Cystic Fibrosis (CF) Foundation sponsored the design, pilot testing, and implementation of the CF Learning Network (CFLN) to explore how the Foundation's Care Center Network (CCN) could become a learning health system. Six years after the design, the Foundation commissioned a formative mixed methods evaluation of the CFLN to assess: CFLN participants' understanding of program goals, attributes, and perceptions of current and future impact.

Methods

We performed semi-structured interviews with CFLN participants to identify perceived goals, attributes, and impact of the network. Following thematic analyses, we developed and distributed a survey to CFLN members and a matched sample of CCN programs to understand whether the themes were unique to the CFLN.

Resu

SUBMITTER: Van Citters AD 

PROVIDER: S-EPMC10508326 | biostudies-literature | 2023 Jul

REPOSITORIES: biostudies-literature