Design and implementation of electronic health record common data elements for pediatric epilepsy: Foundations for a learning health care system.

ABSTRACT:

Objective

Common data elements (CDEs) are standardized questions and answer choices that allow aggregation, analysis, and comparison of observations from multiple sources. Clinical CDEs are foundational for learning health care systems, a data-driven approach to health care focused on continuous improvement of outcomes. We aimed to create clinical CDEs for pediatric epilepsy.

Methods

A multiple stakeholder group (clinicians, researchers, parents, caregivers, advocates, and electronic health record [EHR] vendors) developed clinical CDEs for routine care of children with epilepsy. Initial drafts drew from clinical epilepsy note templates, CDEs created for clinical research, items in existing registries, consensus documents and guidelines, quality metrics, and outcomes needed f

SUBMITTER: Grinspan ZM 

PROVIDER: S-EPMC10508354 | biostudies-literature | 2021 Jan

REPOSITORIES: biostudies-literature