Patient and public involvement in pragmatic trials: online survey of corresponding authors of published trials.

ABSTRACT:

Background

There are few data on patient and public involvement (PPI) in pragmatic trials. We aimed to describe the prevalence and nature of PPI within pragmatic trials, describe variation in prevalence of PPI by trial characteristics and compare prevalence of PPI reported by trial authors to that reported in trial publications.

Methods

We applied a search filter to identify pragmatic trials published from 2014 to 2019 in MEDLINE. We invited the corresponding authors of pragmatic trials to participate in an online survey about their specific trial.

Results

Of 3163 authors invited, 2585 invitations were delivered, 710 (27.5%) reported on 710 unique trials and completed the survey; 334 (47.0%) conducted PPI. Among those who conducted PPI, for many the aim was to increas

SUBMITTER: Vanderhout S 

PROVIDER: S-EPMC10516685 | biostudies-literature | 2023 Sep-Oct

REPOSITORIES: biostudies-literature