Brain health registry updates: An online longitudinal neuroscience platform.

ABSTRACT:

Introduction

Remote, internet-based methods for recruitment, screening, and longitudinally assessing older adults have the potential to facilitate Alzheimer's disease (AD) clinical trials and observational studies.

Methods

The Brain Health Registry (BHR) is an online registry that includes longitudinal assessments including self- and study partner-report questionnaires and neuropsychological tests. New initiatives aim to increase inclusion and engagement of commonly underincluded communities using digital, community-engaged research strategies. New features include multilingual support and biofluid collection capabilities.

Results

BHR includes > 100,000 participants. BHR has made over 259,000 referrals resulting in 25,997 participants enrolled in 30 aging and AD studi

SUBMITTER: Weiner MW 

PROVIDER: S-EPMC10518371 | biostudies-literature | 2023 Nov

REPOSITORIES: biostudies-literature