The economic burden of individuals living with generalized myasthenia gravis and facing social determinants of health challenges.

ABSTRACT:

Objective

Better understanding the impact of social determinants of health (SDOH) barriers from the patient perspective is crucial to improve holistic patient support in generalized myasthenia gravis (gMG), a rare autoimmune disorder with high disease and treatment burden. The objective of this study was to identify economic challenges experienced by individuals living with gMG and SDOH barriers to better address current unmet needs.

Methods

Adults (18-75 years) living with gMG and experiencing SDOH barriers in the United States were recruited to a mixed-methods study including qualitative interviews and a web-based quantitative survey. Quotas were implemented to include a balanced spread of baseline demographic categories including insurance type, living environment, and em

SUBMITTER: Hughes T 

PROVIDER: S-EPMC10520715 | biostudies-literature | 2023

REPOSITORIES: biostudies-literature