The Aswan Rheumatic heart disease reGIstry: rationale and preliminary results of the ARGI database.

ABSTRACT:

Background

Rheumatic Heart Disease (RHD) remains a major cause of valvular heart disease related mortality and morbidity in low- and middle-income countries, with significant variation in characteristics and course of the disease across different regions. However, despite the high disease burden, there is sparse region-specific data on demographics, disease characteristics and course in treated and untreated patients to guide policy.

Methods

The ARGI database is a hospital-based registry in a tertiary referral national centre (Aswan Heart Centre, AHC) in which all patients with the diagnosis of RHD are being included. The mode of presentation, including baseline clinical and echocardiographic characteristics (as well as other imaging modalities), biomarkers and genetics are

SUBMITTER: Kotit S 

PROVIDER: S-EPMC10545855 | biostudies-literature | 2023

REPOSITORIES: biostudies-literature