Dataset Information

Experiences of work for people living with a grade 2/3 oligodendroglioma: a qualitative analysis within the Ways Ahead study.

ABSTRACT:

Objectives

This study aimed to explore the work experiences of people living with an oligodendroglioma.

Design

This was a descriptive qualitative study. One-time semi-structured interviews exploring supportive care needs were conducted; work was discussed at various points throughout each interview. An inductive thematic analysis was undertaken.

Setting

Participants were recruited across the UK through four National Health Service hospitals and the Brain Tumour Charity research involvement networks.

Participants

19 people with grade 2 or 3 oligodendroglioma (mean age 52 years; male n=11). At diagnosis, 16 participants were working, 2 studying and 1 retired. At the interview (mean time since diagnosis 9.6 years; range 1-18 years), seven participants were working, eight retired (four on medical grounds) and four unable to work due to illness.

Results

Seven themes were constructed: (1) physical and cognitive limitations; (2) work ability and productivity; (3) work accommodations; (4) changing roles; (5) attitudes of clients and coworkers; (6) feelings and ambitions; and (7) financial implications. Fatigue, seizures and cognitive deficits influenced work ability. A stressful work environment could exacerbate symptoms. Changes in job roles and work environment were often required. Employer and coworker support were integral to positive experiences. Work changes could result in financial stress and strain.

Conclusions

This study has highlighted, for the first time, influences on work experiences in this understudied population. These findings have implications for clinicians and employers, when considering the importance of work in rehabilitation for people with oligodendrogliomas, and the individually assessed adjustments required to accommodate them, should employment be desired.

SUBMITTER: Walker H

PROVIDER: S-EPMC10546132 | biostudies-literature | 2023 Sep

REPOSITORIES: biostudies-literature

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Publications

Experiences of work for people living with a grade 2/3 oligodendroglioma: a qualitative analysis within the Ways Ahead study.

Walker Hayley H Rimmer Ben B Dutton Lizzie L Finch Tracy T Gallagher Pamela P Lewis Joanne J Burns Richéal R Araújo-Soares Vera V Williams Sophie S Sharp Linda L

BMJ open 20230928 9

<h4>Objectives</h4>This study aimed to explore the work experiences of people living with an oligodendroglioma.<h4>Design</h4>This was a descriptive qualitative study. One-time semi-structured interviews exploring supportive care needs were conducted; work was discussed at various points throughout each interview. An inductive thematic analysis was undertaken.<h4>Setting</h4>Participants were recruited across the UK through four National Health Service hospitals and the Brain Tumour Charity rese ...[more]

PMID: 37770270

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Dataset Information

Experiences of work for people living with a grade 2/3 oligodendroglioma: a qualitative analysis within the Ways Ahead study.

Objectives

Design

Setting

Participants

Results

Conclusions

Publications

Experiences of work for people living with a grade 2/3 oligodendroglioma: a qualitative analysis within the Ways Ahead study.

Similar Datasets

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