'The current mental health status of children and young people with JIA, and their wider family': a charity partner collaboration survey.

ABSTRACT:

Background

This paper presents insight into the scale of mental health concerns for families who have a child or young person with a diagnosis of Juvenile Idiopathic Arthritis (JIA) living in any of the four nations of the United Kingdom (UK). The study's objective is to share the current experiences of those that responded to a charity survey and consider future work to improve mental health support.

Methods

This work was initiated and led by five UK charity partner organisations working with families affected by JIA. Parents/carers of a child or young person with JIA, and young people with JIA, submitted self-completion online questionnaires. The questionnaire asked 19 core questions, with a focus on the mental health impact of having and living with a JIA diagnosis. Quest

SUBMITTER: Livermore P 

PROVIDER: S-EPMC10557198 | biostudies-literature | 2023 Oct

REPOSITORIES: biostudies-literature