Public attitudes towards genomic data sharing: results from a provincial online survey in Canada.

ABSTRACT:

Background

While genomic data sharing can facilitate important health research and discovery benefits, these must be balanced against potential privacy risks and harms to individuals. Understanding public attitudes and perspectives on data sharing is important given these potential risks and to inform genomic research and policy that aligns with public preferences and needs.

Methods

A cross sectional online survey measured attitudes towards genomic data sharing among members of the general public in an Eastern Canadian province.

Results

Results showed a moderate comfort level with sharing genomic data, usually into restricted scientific databases with controlled access. Much lower comfort levels were observed for sharing data into open or publicly accessible databases

SUBMITTER: Etchegary H 

PROVIDER: S-EPMC10560413 | biostudies-literature | 2023 Oct

REPOSITORIES: biostudies-literature