Innovative communication approaches for initializing pediatric palliative care: perspectives of family caregivers and treating specialists.

ABSTRACT:

Background

Effective cooperation between a pediatric palliative care team (PPCT), primary treating specialists, patients and families is crucial for high quality care of children with complex life-limiting conditions. Several barriers among patients, families and treating specialists have been identified in the context of initializing pediatric palliative care. The aim of the study was to assess the experience with initial pediatric palliative care consultations from perspectives of family caregivers and treating physicians with a special focus on two innovative approaches: attendance of the treating specialist and the opportunity for parents to give feedback on the written report from the consultation.

Methods

This was a qualitative study using semi-structured interviews wi

SUBMITTER: Hrdlickova L 

PROVIDER: S-EPMC10563209 | biostudies-literature | 2023 Oct

REPOSITORIES: biostudies-literature