Multiple modes of data sharing can facilitate secondary use of sensitive health data for research.

ABSTRACT: Evidence-based healthcare relies on health data from diverse sources to inform decision-making across different domains, including disease prevention, aetiology, diagnostics, therapeutics and prognosis. Increasing volumes of highly granular data provide opportunities to leverage the evidence base, with growing recognition that health data are highly sensitive and onward research use may create privacy issues for individuals providing data. Concerns are heightened for data without explicit informed consent for secondary research use. Additionally, researchers-especially from under-resourced environments and the global South-may wish to participate in onward analysis of resources they collected or retain oversight of onward use to ensure ethical constraints are respected. Different data-shar

SUBMITTER: Tamuhla T 

PROVIDER: S-EPMC10565310 | biostudies-literature | 2023 Oct

REPOSITORIES: biostudies-literature