Hospital-to-home transitions for children with medical complexity: part 2-a core outcome set.

ABSTRACT: Appropriate outcome measures as part of high-quality intervention trials are critical to advancing hospital-to-home transitions for Children with Medical Complexity (CMC). Our aim was to conduct a Delphi study and focus groups to identify a Core Outcome Set (COS) that healthcare professionals and parents consider essential outcomes for future intervention research. The development process consisted of two phases: (1) a three-round Delphi study in which different professionals rated outcomes, previously described in a systematic review, for inclusion in the COS and (2) focus groups with parents of CMC to validate the results of the Delphi study. Forty-five professionals participated in the Delphi study. The response rates were 55%, 57%, and 58% in the three rounds, respectively. In addition

SUBMITTER: Haspels HN 

PROVIDER: S-EPMC10570151 | biostudies-literature | 2023 Sep

REPOSITORIES: biostudies-literature