What makes a good life: using theatrical performance to enhance communication about polygenic risk scores research in patient and public involvement.

ABSTRACT: The aim of this patient and public involvement and engagement (PPIE) work was to explore improvised theatre as a tool for facilitating bi-directional dialogue between researchers and patients/members of the public on the topic of polygenic risk scores (PRS) use within primary or secondary care. PRS are a tool to quantify genetic risk for a heritable disease or trait and may be used to predict future health outcomes. In the United Kingdom (UK), they are often cited as a next-in-line public health tool to be implemented, and their use in consumer genetic testing as well as patient-facing settings is increasing. Despite their potential clinical utility, broader themes about how they might influence an individual's perception of disease risk and decision-making are an active area of research;

SUBMITTER: Mason AM 

PROVIDER: S-EPMC10576689 | biostudies-literature | 2023 Oct

REPOSITORIES: biostudies-literature