Life on the Frontlines: Caregiver Experience of Pediatric Cerebrospinal Shunt Malfunction.

ABSTRACT:

Background

We aimed to characterize the caregiver experience in the detection and evaluation of pediatric cerebrospinal shunt malfunction.

Methods

In this descriptive qualitative study, we recruited English-speaking caregivers of children aged five years or less in collaboration with a stakeholder organization. Semistructured interviews were completed; content targeted the caregiver experience of shunt malfunction. Interviews were audio-recorded, transcribed, and deidentified. Qualitative data were analyzed using a conventional content analysis approach.

Results

We enrolled 20 caregivers (n = 20 mothers). The median child age at the time of the interview was 2.8 years; about half (n = 11) were born prematurely and the majority (n = 15) had shunts placed at age less th

SUBMITTER: Dorner RA 

PROVIDER: S-EPMC10578452 | biostudies-literature | 2023 Oct

REPOSITORIES: biostudies-literature