Navigating the transition of care in patients with inborn errors of immunity: a single-center's descriptive experience.

ABSTRACT: The transition from pediatric to adult care is a critical milestone in managing children, especially in those with complex chronic conditions. It involves ensuring the patient and family adapt correctly to the new phase, maintaining continuity of ongoing treatments, and establishing an appropriate follow-up plan with specialists. Patients with Inborn error of immunity (IEI), formerly known as Primary Immune Disorders (PID) are part of a group of disorders characterized by alterations in the proper functioning of the immune system; as the diagnostic and treatment tools for these entities progress, life expectancy increases, and new needs emerge. These children have special needs during the transition. Particularly important in the group of children with PID and syndromic features, who often

SUBMITTER: Mejia Gonzalez MA 

PROVIDER: S-EPMC10579936 | biostudies-literature | 2023

REPOSITORIES: biostudies-literature