Grandparents' pregnancy and neonatal loss network: Designing a website for grandparents bereaved by the perinatal loss of a grandchild.

ABSTRACT:

Objectives

When a child dies during the perinatal period, grandparents lack the resources to navigate their loss. We applied principles of co-creation and consumer-informed design to seek grandparents' expertise in determining (1) whether an internet-based resource would be suitable/beneficial for grandparents, (2) if so, what design features and content should be included and, (3) any barriers to utilising an internet-based resource.

Method

In Stage One, 152 grandparents responded to a survey regarding health and eHealth literacy and website design and content. In Stage Two, a draft website was developed, with 21 grandparents providing feedback about the website's design, content and navigability.

Results

Health and eHealth literacy measures indicated that >60% of pa

SUBMITTER: Lockton J 

PROVIDER: S-EPMC10590732 | biostudies-literature | 2023 Dec

REPOSITORIES: biostudies-literature