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Dataset Information

Autism care pathway in Europe.


ABSTRACT:

Background

Autism is a lifelong complex neurodevelopmental condition that affects brain development and behaviour with significant consequences for everyday life. Despite its personal, familial, and societal impact, Europe-wide harmonised guidelines are still lacking for early detection, diagnosis, and intervention, leading to an overall unsatisfactory autistic person and carer journey.

Methods

The care pathway for autistic children and adolescents was analysed in Italy, Spain and the UK from the perspective of carers (using a survey aimed at caregivers of autistic children 0-18 years old), the autistic community, and professionals in order to identify major barriers (treatment gaps) preventing carers from receiving information, support, and timely screening/diagnosis and in

SUBMITTER: Mendez MA 

PROVIDER: S-EPMC10594203 | biostudies-literature | 2023 Sep

REPOSITORIES: biostudies-literature