Cost of illness in inclusion body myositis: results from a cross-sectional study in Germany.

ABSTRACT:

Background

Inclusion body myositis (IBM) is the most frequent type of myositis in elder patients with a slow chronic progression and refractory to treatment. Previous cost of illness (COI) studies in IBM used claims data to estimate direct costs in the US. No evidence exists globally on both direct and indirect costs in IBM from a societal perspective. We conducted a survey in patients registered in the German IBM patient registry. Self-developed items were used to assess the utilized healthcare resources and estimate the cost. The German Self-Administered Comorbidity Questionnaire (SCQ-D), the sIBM Physical Functioning Assessment (sIFA) and patient-reported measures for satisfaction and improvements in healthcare were applied for an explorative analysis.

Results

In total, 8

SUBMITTER: Senn KC 

PROVIDER: S-EPMC10601274 | biostudies-literature | 2023 Oct

REPOSITORIES: biostudies-literature