Financial burden and recommended multilevel solutions among caregivers of pediatric hematopoietic stem cell transplant recipients.

ABSTRACT:

Background

The healthcare costs of patients who receive hematopoietic stem cell transplantation (HSCT) are substantial. At the same time, the increasing use of pediatric HSCT leaves more caregivers of pediatric HSCT recipients at risk for financial burden-an understudied area of research.

Methods

Financial burden experienced by caregivers of recipients who received autologous or allogeneic transplants was assessed using an explanatory mixed-methods design including a one-time survey and semi-structured interviews. Financial burden was assessed through an adapted COmprehensive Score for financial Toxicity (COST) as well as questions about the types of out-of-pocket costs and cost-coping behaviors. Chi-squared or Fisher's exact tests were used to assess differences in costs in

SUBMITTER: Waters AR 

PROVIDER: S-EPMC10615841 | biostudies-literature | 2023 Dec

REPOSITORIES: biostudies-literature