Decisional Support Needed when Facing Tough Decisions: Survey of Parents with Children having Differences of Sex Development.

ABSTRACT:

Introduction

Parents of infants and young children newly diagnosed with differences of sex development (DSD) commonly face medical and psychosocial management decisions at a time when they are first learning about the condition and cannot consult their child for input. The aim of this study was to identify areas of greatest need for parental decisional support.

Methods

34 parents of children receiving care for DSD at one of three US children's hospitals participated in a survey to learn what clinical and psychosocial decisions needed to be made on behalf of their child. Parents were then asked to identify and focus on a "tough" decision and respond to questions assessing factors affecting decision-making, decision-making preferences, decisional conflict, and decision regret.

SUBMITTER: Gardner M 

PROVIDER: S-EPMC10621652 | biostudies-literature | 2023

REPOSITORIES: biostudies-literature