Data sharing practices in collaborative human genomic research in low- and middle-income countries: A systematic review protocol.

ABSTRACT:

Introduction

The practice of creating large databases has become increasingly common by combining research participants' data into larger repositories. Funders now require that data sharing be considered in newly funded research project, unless there are justifiable reasons not to do so. Access to genomic data brings along a host of ethical concerns as well as fairness and equity in the conduct of collaborative research between researchers from high- income and low-and middle-income countries.

Materials and methods

This systematic review protocol will be developed in line with PRISMA -guidelines which refers to Open Science Framework, registered in PROSPERO (https://www.crd.york.ac.uk/prospero/) record CRD42022297984 and published in a peer reviewed journal. Data sources wil

SUBMITTER: Ekusai-Sebatta D 

PROVIDER: S-EPMC10621801 | biostudies-literature | 2023

REPOSITORIES: biostudies-literature