Quality of Life Ratings and Proxy Bias in Primary Progressive Aphasia: Two Sides to the Story?

ABSTRACT: A valid measure of quality of life is important for clinical goal setting and for evaluating interventions. In the amnestic dementias, proxy-raters (e.g. friends, families, clinicians) typically rate quality of life lower than the self-ratings given by the person with dementia - a proxy bias. This study investigated whether the same proxy bias occurs in Primary Progressive Aphasia (PPA), a language-led dementia.Quality of life was measured in 18 individuals with PPA using self-ratings, and proxy-ratings by their main communication partner, using the Quality of Life in Alzheimer's Disease Scale.There was no strong evidence for proxy bias at a group level, with no consistent pattern across dyads, where proxy- and self-ratings did not show good levels of agreement. We suggest that self

SUBMITTER: Ruggero L 

PROVIDER: S-EPMC10623902 | biostudies-literature | 2023 Jan-Dec

REPOSITORIES: biostudies-literature