Parents' Views on Autopsy, Organ Donation, and Research Donation After Neonatal Death.

ABSTRACT:

Importance

Parents who experience neonatal loss have the option to participate in autopsy, organ donation, and research donation. However, clinicians are uncomfortable discussing autopsy and may not be aware of research and organ donation opportunities.

Objective

To capture the perspectives of parents who had experienced neonatal loss about autopsy, organ donation, and research donation.

Design, setting, and participants

This qualitative study used virtual focus groups with parents who attended a local bereavement support group in the US. Participants were recruited from Helping After Neonatal Death, a support group with a local chapter. Participants self-selected from an email request if they met the following criteria: aged 18 years or older, English speaking, at le

SUBMITTER: Crouch EE 

PROVIDER: S-EPMC10628732 | biostudies-literature | 2023 Nov

REPOSITORIES: biostudies-literature