Creation of a data commons for substance misuse related health research through privacy-preserving patient record linkage between hospitals and state agencies.

ABSTRACT:

Objectives

Substance misuse is a complex and heterogeneous set of conditions associated with high mortality and regional/demographic variations. Existing data systems are siloed and have been ineffective in curtailing the substance misuse epidemic. Therefore, we aimed to build a novel informatics platform, the Substance Misuse Data Commons (SMDC), by integrating multiple data modalities to provide a unified record of information crucial to improving outcomes in substance misuse patients.

Materials and methods

The SMDC was created by linking electronic health record (EHR) data from adult cases of substance (alcohol, opioid, nonopioid drug) misuse at the University of Wisconsin hospitals to socioeconomic and state agency data. To ensure private and secure data exchange, Privac

SUBMITTER: Afshar M 

PROVIDER: S-EPMC10629613 | biostudies-literature | 2023 Dec

REPOSITORIES: biostudies-literature