"Give me the knowledge, and I can do what I want with it, it's my right and my choice": Triangulated perspectives on the disclosure of young onset dementia.

ABSTRACT:

Introduction

Receiving a diagnosis of young onset dementia is particularly distressing; the person under 65 years is often in employment, with financial commitments, young children, and an active social life. Some of the stress experienced by younger people experiencing cognitive changes can be reduced by an early and accurate diagnosis, but this is contingent on the timing of disclosure and a process which is sensitive and appropriate to the person. The study aim was to explore experiences of giving and receiving a diagnosis of young onset dementia, by triangulating the perspectives of the key parties involved.

Methods

A qualitative design was employed, using semi-structured interviews. Participants (N = 47) included people with young onset dementia (n = 10),

SUBMITTER: Fox S 

PROVIDER: S-EPMC10644682 | biostudies-literature | 2023 Nov

REPOSITORIES: biostudies-literature