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'It's really important to be collaborating': Experiences of participatory research for Chinese and Vietnamese parents of autistic children.


ABSTRACT:

Background and aims

Participatory research involves academic partners working together with the community that is affected by research to make decisions about that research. Such approaches often result in research that is more respectful of, and responsive to, community preferences - and is vital in the context of autism research with culturally and linguistically diverse (CALD) communities. Whilst participatory approaches are becoming more commonplace within CALD autism research, no studies have explored the experiences of being involved in autism research from the perspectives of CALD community partners over the course of a study. This paper intended to address this gap by reporting on the experiences of CALD parents of autistic children who were community partners in a 1-year A

SUBMITTER: Smith J 

PROVIDER: S-EPMC10644728 | biostudies-literature | 2023 Jan-Dec

REPOSITORIES: biostudies-literature