Measurement of Health-Related Quality of Life in Individuals With Rare Diseases in China: Nation-Wide Online Survey.

ABSTRACT:

Background

Rare diseases (RDs) affect millions of people worldwide, and these diseases can severely impact the health-related quality of life (HRQoL) of those affected. Despite this, there is a lack of research measuring HRQoL using the EQ-5D-5L, which is one of the most widely used generic preference-based instruments to measure HRQoL in populations living with RDs.

Objective

This study aimed to measure HRQoL using the EQ-5D-5L in a large number of patients with various types of RDs in China, and to examine the relationship between respondents' socioeconomic characteristics and preference-based health utility scores.

Methods

The data used in this study were obtained from a web-based survey conducted in China. The survey aimed to explore and understand the health and

SUBMITTER: Xu RH 

PROVIDER: S-EPMC10646671 | biostudies-literature | 2023 Oct

REPOSITORIES: biostudies-literature