Views on sharing mental health data for research purposes: qualitative analysis of interviews with people with mental illness.

ABSTRACT:

Background

Improving the ways in which routinely-collected mental health data are shared could facilitate substantial advances in research and treatment. However, this process should only be undertaken in partnership with those who provide such data. Despite relatively widespread investigation of public perspectives on health data sharing more generally, there is a lack of research on the views of people with mental illness.

Methods

Twelve people with lived experience of mental illness took part in semi-structured interviews via online video software. Participants had experience of a broad range of mental health conditions including anxiety, depression, schizophrenia, eating disorders and addiction. Interview questions sought to establish how participants felt about the use

SUBMITTER: Watson E 

PROVIDER: S-EPMC10648337 | biostudies-literature | 2023 Nov

REPOSITORIES: biostudies-literature