'I feel that I should decide on my own….': who should be involved in the decision-making process for adolescent involvement in HIV research?

ABSTRACT:

Introduction

Efforts to improve health outcomes among adolescents and young adults living with HIV (ALHs) are hampered by limited adolescent engagement in HIV-related research. We sought to understand the views of adolescents, caregivers and healthcare workers (HCWs) about who should make decisions regarding ALHs' research participation.

Methods

We conducted focus group discussions (FGDs) and in-depth interviews (IDIs) with ALHs (aged 14-24 years), caregivers of ALHs and HCWs from six HIV care clinics in Western Kenya. We used semi-structured guides to explore ALHs' involvement in research decisions. Transcripts were analysed using thematic analysis; perspectives were triangulated between groups.

Results

We conducted 24 FGDs and 44 IDIs: 12 FGDs with ALHs, 12 with car

SUBMITTER: Mukumbang FC 

PROVIDER: S-EPMC10649498 | biostudies-literature | 2023 Nov

REPOSITORIES: biostudies-literature