Public preference on sharing health data to inform research, health policy and clinical practice in Australia: A stated preference experiment.

ABSTRACT:

Objective

To investigate public willingness to share sensitive health information for research, health policy and clinical practice.

Methods

A total of 1,003 Australian respondents answered an online, attribute-driven, survey in which participants were asked to accept or reject hypothetical choice sets based on a willingness to share their health data for research and frontline-medical support as part of an integrated health system. The survey consisted of 5 attributes: Stakeholder access for analysis (Analysing group); Type of information collected; Purpose of data collection; Information governance; and Anticipated benefit; the results of which were analysed using logistic regression.

Results

When asked about their preference for sharing their health data, responden

SUBMITTER: Varhol RJ 

PROVIDER: S-EPMC10653479 | biostudies-literature | 2023

REPOSITORIES: biostudies-literature