Variation in pediatric and adolescent electronic health data sharing practices under the 21st Century Cures Act.

ABSTRACT:

Objective

To describe real-world practices and variation in implementation of the Information Blocking provisions amongst healthcare organizations caring for pediatric patients.

Materials and methods

An online survey regarding implementation practices was distributed to representatives from 10 participating US healthcare organizations located in 6 different states. The survey was followed by structured interviews conducted through video conference. Information was gathered about implementation practices at each organization, with a focus on patient and proxy portal access to, and segmentation capabilities of, certain data classes listed in the United States Core Data for Interoperability Version 1.

Results

All organizations had implemented the information blocking pro

SUBMITTER: Sinha S 

PROVIDER: S-EPMC10654877 | biostudies-literature | 2023 Nov

REPOSITORIES: biostudies-literature