Family carer experiences of hospice care at home: Qualitative findings from a mixed methods realist evaluation.

ABSTRACT:

Background

Hospice-at-home aims to enable patients approaching end-of-life to die at home and support their carers. A wide range of different service models exists but synthesised evidence on how best to support family carers to provide sustainable end-of-life care at home is limited.

Aim

To explore what works best to promote family carers' experiences of hospice-at-home.

Design

Realist evaluation with mixed methods. This paper focuses on qualitative interviews with carers (to gain their perspective and as proxy for patients) and service providers from 12 case study sites in England. Interviews were coded and programme theories were refined by the research team including two public members.

Setting/participants

Interviews with carers (involved daily) of patient

SUBMITTER: Abrahamson V 

PROVIDER: S-EPMC10657508 | biostudies-literature | 2023 Dec

REPOSITORIES: biostudies-literature